Strong Little Souls Founder Advocates for Pediatric Cancer Research Fund

By Sabrina DammsiBerkshires Staff
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PITTSFIELD, Mass. — Strong Little Souls founder Madison Quinn headed to the State House two weeks ago to advocate for a bill that would provide funding for pediatric cancer research. 
 
"Pediatric cancers are desperately underfunded," said Quinn, now a pediatric nurse. 
 
Quinn was showing support for Bill S.2496 An Act Improving Pediatric Cancer Research at a public hearing of the Joint Committee on Public Health. If voted into law the act would establish a Pediatric Cancer Research and Resource Project Trust Fund. 
 
The committee was hearing testimony on more than a dozen bills.
 
Also testifying on the need for cancer funding were Kathy and Joseph Arabia of North Adams, founders of the AYJ Fund, which raises money for childhood cancer research and family support. 
 
Although there is federal funding currently, Massachusetts does not fund any pediatric cancer research, Quinn said. 
 
According to the American Childhood Cancer Organization, cancer is the No. 1 cause of death by disease for children in America. Each year an estimated 15,780 children between the ages of birth and 19 are diagnosed with cancer.
 
The fund would provide grant funding for pediatric cancer research and resource projects in Massachusetts. This would include causes, prevention, education, screening, treatments and cures as well as research on the symptoms and effects patients experience after completing a course of treatment.
 
Quinn noted in her testimony that many of the treatments were developed decades before and primarily for adults.
 
"The incident rate of childhood cancers is rising and still the development of new treatments for childhood cancer remain stagnant," she told the lawmakers, and that these "harsh and aggressive treatments" can be as deadly as the disease.
 
"These treatments leave survivors with lifelong devastating side effects," Quinn continued. "I've seen time and time again children become cancer free just to succumb to the treatments that were supposed to cure them."
 
Both Quinn and the Arabias noted the state's world-class medical facilities and the importance of Massachusetts taking the lead in pediatric cancer research. 
 
The Pediatric Cancer Resource Project is defined by the bill as a community-based project that aims to improve the lives of pediatric cancer patients by providing educational, informational, and financial resources to help reduce the burden of childhood cancer and its long-term impacts.
 
Historically only 4 percent of the federal cancer budget is allocated for childhood cancer; the remaining 96 percent has gone to adult cancers. 
 
Although the budget increased to 8 percent last year, the funding allocated for cancer is currently at risk of being reduced, Quinn said. 
 
The reason the federal cancer budget underfunds the pediatric cancer budget is because "they choose to invest in cancers that are more prevalent. They tend to look at that more than the life lost," Quinn said. 
 
When an adult is diagnosed with cancer the average life lost is about seven years but when a child is diagnosed with cancer the average life lost is 70 years, she said, "because these children are just getting diagnosed and passing away so young. So the research is just not there at a federal level."

 


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Pittsfield Schools Finalizing Bus Routes for Fall

By Brittany PolitoiBerkshires Staff

PITTSFIELD, Mass. — The district currently has enough bus drivers for the upcoming school year, and families will know their child's transportation schedule in mid-August. 

With about five weeks left of summer vacation, Superintendent Latifah Phillips updated the School Committee on transportation for the 2026-2027 year with middle school restructuring and the closure of Morningside Community School. 

Busing is a question that has continuously been raised as the Pittsfield Public Schools approach an academic year with a couple of big changes. 

"The reason that the bus stops and times aren't shared until very close to the school year is that routes change based on every student that moves into the district and requires a bus, and so it's important for us to wait as late as possible to ensure that families are getting the most accurate timetable," Phillips explained during a meeting held at Reid Middle School on Thursday. 

"We are also continuing to explore after-school transportation for the four schools receiving Morningside, and a survey was given to students who attend the Summer Morningside 21st Century Program to assess transportation needs."

That survey found that transportation does not appear to be a big impediment to students participating in the after-school program, but funding is set aside to ensure students are able to access the same services as they were the previous year. 

The district is still planning to offer after-school programming for Morningside transfer students, and is working with the four receiving elementary schools (Allendale, Egremont, Williams, Capeless) to plan a practice bus ride. 

Phillips explained that, for someone who has never ridden a bus before, and especially a school bus, they want to ensure that students are poised for success and understand the rules and expectations before the first ride. Students will be able to get on the bus, ride the route, arrive at school, have a quick break, maybe play on the playground and have a popsicle, then return home on the bus. 

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