Governor Signs Order to Support Adults with Profound Autism

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BOSTON — Ahead of Autism Awareness Month, Governor Maura Healey signed an Executive Order to establish a statewide strategy to better support adults with profound autism, or adults who are over 22 years old with diagnosed autism spectrum disorder and require 24-hour support and assistance due to a significant intellectual disabilities and limited or no language skills. 
 
The Executive Order aims to improve coordination across state agencies, promote innovation and advance outcomes for adults with profound autism and their families.
 
Adults with profound autism and intellectual developmental disabilities represent a highly vulnerable and growing population in Massachusetts.  
 
"Massachusetts is committed to care and support for all. This executive order will strengthen coordination across agencies and help ensure that adults with profound autism and their families receive the support they need," said Governor Healey. "I look forward to appointing individuals representing families, providers, clinicians and advocates who bring deep expertise and lived experience to this work."  
 
The Executive Order establishes an advisory council led by the Executive Office of Health and Human Services, with designees from the Executive Office of Housing and Livable Communities, Executive Office of Administration and Finance, Department of Developmental Services, Department of Mental Health, Medicaid Director, and the Chairs of the Joint Committee on Children, Families, and Persons with Disabilities. Governor Healey will also appoint up to 10 additional members representing families, clinicians, providers and advocates with expertise in supporting adults with profound autism.  
 
The advisory council will develop recommendations focused on:  
  • Reporting on the prevalence of adults with profound autism in Massachusetts;  
  • Strengthening coordination across state systems serving adults with profound autism, including reviewing eligibility requirements across service systems; 
  • Promoting person-centered, strengths-based approaches that recognize the needs of adults with profound autism; 
  • Identifying opportunities to improve access to stable housing, health care, community-based services, and meaningful daily activities; 
  • Encouraging innovative residential living and service models that support safety, stability, and quality of life; 
  • Improving the use of data to better understand population needs, service utilization, outcomes, and efficient use of state resources over time; 
  • Supporting a sustainable and well-trained workforce responsive to level of care and support needs; and 
  • Informing future policy and budget planning in a manner consistent with the state’s long-term fiscal responsibility. 
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Social Service Organizations Highlight Challenges, Successes at Poverty Talk

By Brittany PolitoiBerkshires Staff

Dr. Jennifer Michaels of the Brien Center demonstrates how to use Narcan. Easy access to the drug has cut overdose deaths in the county by nearly half. 

PITTSFIELD, Mass. — Recent actions at the federal level are making it harder for people to climb out of poverty.

Brad Gordon, executive director of Upside413, said he felt like he was doing a disservice by not recognizing national challenges and how they draw a direct line from choices being made by the Trump administration and the challenges the United States is facing. 

"They more generally impact people's ability to work their way out of poverty, and that's really, that's really the overarching dynamic," he said. 

"Poverty is incredibly corrosive, and it impacts all the topics that we'll talk about today." 

His comments came during a conversation on poverty hosted by Berkshire Community Action Council. Eight local service agency leaders detailed how they are supporting people during the current housing and affordability crisis, and the Berkshire state delegation spoke to their own efforts.

The event held on March 27 at the Berkshire Athenaeum included a working lunch and encouraged public feedback. 

"All of this information that we're going to gather today from both you and the panelists is going to drive our next three-year strategic plan," explained Deborah Leonczyk, BCAC's executive director. 

The conversation ranged from health care and housing production to financial literacy and child care.  Participating agencies included Upside 413, The Brien Center, The Food Bank of Western Massachusetts, MassHire Berkshire Career Center, Berkshire Regional Transit Authority, Greylock Federal Credit Union, Massachusetts College of Liberal Arts, and Child Care of the Berkshires. 

The federal choices Gordon spoke about included allocating $140 billion for the U.S. Immigration and Customs Enforcement, investing $38 billion to convert warehouses into detention centers, cutting $1 trillion from Medicaid over 10 years, a proposed 50 percent increase in the defense budget, and cutting federal funding for supportive housing programs. 

Gordon pointed to past comments about how the region can't build its way out of the housing crisis because of money. He withdrew that statement, explaining, "You know what? That's bullshit, actually."

"I'm going to be honest with you, that is absolute bullshit. I have just observed over the last year or so how we're spending our money and the amount of money that we're spending on the federal side, and I'm no longer saying in good conscience that we can't build our way out of this," he said. 

Upside 413 provided a "Housing Demand in Western Massachusetts" report that was done in collaboration with the University of Massachusetts at Amherst's Donahue Institute of Economic and Public Policy Research. It states that around 23,400 units are needed to meet current housing demand in Western Mass; 1,900 in Berkshire County in 2025. 

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